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Maybe if he had been born one day later or one day earlier.. Maybe if his parents had chosen another hospital, the life of Rafael would look completely different now. Maybe instead of spending his days searching through the internet hoping to find the a solution for his condition, now he might be a law graduate and in his spare time he would develop his passion for karate. Maybe... but life wrote a completely different scenario fir this young and ambitious boy. 28 years ago after the birth in a hospital, Rafael got infected with staph. Several weeks of antibiotic therapy brought the desired effect.
You can visit the website (in Polish) where you can find the information how to contact Raphael: zawszelkacene.pl
However, uninvited intruder had caused a serious damage in the body of a small Rafael. Damage to the bone - bending spine. His parents for many years watched as their son was growing up, developing his passions, believing that the staph infection period in childhood would not affect his future. They had never forgotten the difficult start, however, they believed that the worst is behind their son. Unfortunately, the disease for many years was not giving clear symptoms that it somehow developed in the spine.
The first alarming symptoms appeared during puberty and intensive growth. Escalating pain in the thoracic made Rafael to stop training karate. The visits to neurologists and orthopedic surgeons began. Kiphosis bent the spine section Th3 - Th5 (at the height of the heart between the aorta) reached 90 degrees. It was the first time they heard the word "operation". They could not understand why a healthy, filled with energy and many passions boy became a serious patient, who was threatened with a permanent disability. A side effect of complicated surgery, which was to prevent further kinks spine, would end up with the paralysis from the waist down. The terrifying vision of life in a wheelchair made Rafael not to agree to undergo the surgery. The intensive rehabilitation and specialized exercises had to begin.
Persistence and enthusiasm, which never left Rafael, made the bending of the spine has ceased to act, and pain in the chest subsided. Unfortunately, Rafael’s joy did not last long - one day he lost feeling in his legs. The disease didn’t forget about him. Once again he got the false hope that he would fight with it. For many years, the bend 24 of the spine reached 110 degrees. Intensifying pressure made Rafael begin to lose control of his body. There was no turning back - wheeling chair. The execution of the decompression of the spinal cord, which consists in inserting between the circles specialized brackets, which were designed to stabilize the spine and prevent further kinks, was an emergency. Another episode of remission of pain ... Rafael tried to once again start a normal life without pain. He began to study law. He did not want his life to be stopped. Damage to the spine, unfortunately, never allowed him to return to sports. The disease did not give up. The bending of the spine was still progressing. The pain became unbearable. Restful sleep is a dream that at this moment it is impossible to realize. He did not want to let the disease make his life full of pain and suffering. Legal codes that he might have studied turned into search of refuge, clinics and specialists. German clinic is the last hope. Following that consultation, held in October, the doctors suggested a treatment. Progressive kyphotic bending of the spine requires immediate treatment to further dent not damage internal organs and, in order not to interrupt the core. Doctors from the German clinic could remove the old buckles implemented in 2010, which ceased to fulfill its function, cut out 4 circles bent, and in their place will insert taken from Rafael ribs. Decompression of the spinal cord will allow him to start a life without pain, to work, and above all, let him be independent. Maybe one day he may be truly happy and healthy again and maybe will be able to return to university. Perhaps all of what happened to Rafael, has its reason. The coincidence of unfortunate consecutive events. Maybe if this story had happened to someone else, we would have never heard about the pain, many years of struggle and fight for their efficiency.
Perhaps someone else in the privacy and solitude of his room would easily deal with losing his strength and would silently waited for the end of his life. But not Rafael ... Accidents meet the strongest. Those who, despite many adversities, every day wake up and in the smallest detail, and the most ordinary activities look for happiness and motivation to change. Rafael never doubts that one day he will recover. He will find a place where there is a chance to change his life. This is an opportunity that will allow him to connect all the pieces of his life into a coherent whole and let him continue what began years ago, and what the disease broke imperceptibly. He believes that he can achieve this. To do this, what he needs is our support.
You can visit the website (in Polish) where you can find the information how to contact Raphael: zawszelkacene.pl
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