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In January 2017, we set out on a mission to find a cure for our
daughter Mila’s devastating condition, Batten Disease— a disorder
that rips abilities, and then life, away from children.
After fighting for Mila's life day and night for almost one
year, it seems unreal that we are telling you that Mila will receive
a potentially
LIFE-SAVING TREATMENT
this JANUARY.
There’s no other way to put it—
my 7-year-old daughter, Mila, is dying
. I lie by her side every night when she sleeps and my heart
bleeds. My face burns from the tears.
Mila could be your child. She splashed in the pool, begged for
chocolate ice cream, and sang her favorite songs. She rode bikes.
She skied. But at 4 years old, she started to fall over, to bump
into things. She pulled books in close, got stuck on words. She was
finally diagnosed with
Batten Disease
,
a rare fatal genetic condition that robs normal children of everything
. They end up bedridden, on a feeding tube, with seizures, and
cognitively impaired. There is no cure... yet.
We were given no hope. But we discovered that scientists are
just now able to STOP and even REVERSE genetic diseases like Batten.
So we fought day and night and have raised over $1.5M to fund the
science that could lead to a cure.
Our tireless work and YOUR incredible support
have paid off.
Mila will receive a new and potentially LIFE-SAVING treatment
this JANUARY.
It seems unreal.
Mila is rapidly declining every day. Our team of scientists is
working around the clock to make this treatment happen as soon as
humanly possible. But Mila's future is still unknown so we are
continung to raise money so we're prepared for the unexpected costs.
And we have already begun working on our next project that could
compliment Mila's treatment and help many other children.
_______________________________________
YOU CAN SAVE MILA!!
1)
GIVE
whatever you can. No donation is too small (tax-deductible)
2)
SHARE
on social media (
#SavingMila
)
3)
EMAIL
this page -
to your family + friends.
_______________________________________
Mila's story doesn't end here!
YOU can continue to help us fight for her life.
With gratitude and great urgency,
Julia, Alek, Mila, and Azlan
TIME IS RUNNING OUT
Please, please help give Mila a second chance at life before
it's too late. No words can describe watching Mila lose her vision,
her ability to talk and walk. Mila still has her laughter and
excitement for life. But we know this too will soon start to fade.
The path to a cure exists. We're racing against time and
money is our only barrier
.
WHERE YOUR MONEY IS GOING
Mila's Miracle Foundation, Inc. is a 501(c)(3) nonprofit
organization. Our mission is to fund treatments for Batten Disease
with a goal of ending it forever. We are currently racing against
time to fund a cutting-edge gene therapy trial we have put together
with the very best in the field. But saving lives is expensive. Mila
and other children like her deserve the chance for gene therapy to
stop the disease before it's too late. We CAN save children's lives together!
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